Events
RareKids-CAN events bring together researchers, clinicians, patient and family partners, and collaborators from across Canada to share knowledge, build connections, and advance pediatric rare disease clinical trials.
Explore upcoming webinars, meetings, and learning opportunities designed to support collaboration, capacity building, and innovation across the rare disease community.
Upcoming Events
Example Event
July 1st-2nd, 2026
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Past Events
June 15, 2026: ATMP Webinar: A Practical Primer for Clinical Coordinators, Nurses & Pharmacists
This webinar was the first in a series organized under Key Initiative 1.3 of the RareKids-CAN strategic priority, ‘Strengthening Pediatric Rare Disease Clinical Trial Capacity and Advanced Therapy Medicinal Product Readiness.’
June 2, 2026: From Evidence to Access: Do Lived and Clinical Experiences Shape HTA Decisions?
How do lived experiences and frontline clinical insights influence health technology assessment (HTA) decisions in rare diseases?
This panel explored how patient and clinician voices are integrated into evidence frameworks. Through real-world examples, the discussion explored how HTA decisions can be more meaningfully anchored in lived and clinical experience.
May 14, 2026: Bill C-265 Webinar: Improving Access to Essential Medications in Canada
RareKids-CAN hosted a timely conversation with MP Marcus Powlowski (MP for Thunder Bay – Rainy River) alongside healthcare professionals and patient advocates from across Canada, on improving access to essential medications not currently available in the country..
Participants learned what the changes proposed in Bill C-265 could mean for patients, families, and healthcare providers.
March 24, 2025: RareKids-CAN Round Up: Overview, Updates, and Collaboration [VIRTUAL]
This virtual information session is an opportunity to:
- Build connections within the community
- Gain an overview of RareKids-CAN, including the current services we offer to support study teams
- Learn about our deliverables and activities across each sub-platform and the Clinical Trial Operations and Coordinating Hub (CTOCH)
- Share your feedback on the network
Rare Disease Day 2026
RareKids-Can’s pediatric research institutions and their affiliated hospitals hosted events throughout the day (and during the week leading up to it) to raise awareness for patients and families living with rare diseases, as well as the clinicians and researchers who support them.
- RQMO 2026 International Rare Disease Day
- BC Children’s Hospital Rare Disease Research Symposium 2026
- University of Alberta Rare Disease Day 2026
- RareKids-CAN Patient and Family Engagement Sub-Platform: What’s missing in the paediatric rare disease research space on this part of Turtle Island called Canada?