Transition to Adulthood
Supporting continuity of care and research participation as children with rare diseases transition into adult healthcare systems.
Transitioning from pediatric to adult healthcare systems can present significant challenges for individuals living with rare diseases. This sub-platform supports research and collaboration aimed at improving continuity, coordination, and long-term engagement across stages of care and participation.
Impact
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Co-Leads
Members
List members of the sub platform to demonstrate expertise (will need support gathering this information, ideally photo, name, and external title/affiliations)