New Paper Provides Practical Guide to Cell and Gene Therapies in Pediatric Rare Disease Research
Cell and gene therapies are rapidly transforming the pediatric rare disease treatment landscape and are offering new possibilities for conditions…
Category: News
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Rewriting Rare Disease Care: How Collaboration and Clinical Trials Are Transforming Pediatric Research and Access to Treatment
Canada is entering a new era in pediatric rare disease research, driven by advances in precision medicine and novel, innovative…
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Strengthening Collaboration Across Canada: Q&A with Humaira Ahmed, RareKids-CAN Clinical Trial Navigator
RareKids-CAN’s Clinical Trial Navigator network supports pediatric rare disease clinical trial readiness across Canada by helping connect institutions, investigators, and…
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Building Capacity for Pediatric Rare Disease Research: Q&A with Cara Grobbecker, RareKids-CAN Clinical Trial Navigator
RareKids-CAN’s Clinical Trial Navigators help strengthen pediatric rare disease clinical trial capacity across Canada by serving as a local contact…
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Building National Readiness for Pediatric Rare Disease Trials: Q&A with Davy Eng, RareKids-CAN Clinical Trial Navigator
RareKids-CAN’s Clinical Trial Navigators help strengthen pediatric rare disease clinical trial readiness across Canada by supporting study start-up, facilitating collaboration…
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Connecting Families to Opportunity Through Clinical Trials: Q&A with Daislyn Vidal, RareKids-CAN Clinical Trial Navigator
Clinical trials can play a critical role in improving access to treatments and advancing care for children living with rare…
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Press Release: RareKids-CAN supports Bill C-265 to improve access to treatments for children with rare diseases
RareKids-CAN, Canada’s pediatric rare disease clinical trials and treatment network funded by the Canadian Institutes for Health Research, supports Bill…
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Strengthening Family Engagement Capacity Through the Family Engagement in Research Course
Patients and families are central to RareKids-CAN and our work. As part of our commitment to Strategic Priority 1: Enhancing…
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IMPaCT Training Program Busisiwe Zapparoli: Advancing Equity and Outcomes in Rare Disease Research
For many children living with rare conditions, the biggest challenges aren’t always the ones you see on a chart; they…
